Trying to Make a Difference

6 Mar

I have been on a campaign to change Social Security Disabilty Laws to protect full-time caregivers. I have contacted my Representatives, Senators, the White House, the ACLU, Leeza Gibbons website about caregiving, the MO Advocacy Services all to no avail. I know there has to be many more people out there going through what I am. We need to get the SS laws changed to protect caregivers!! Please join me.

Concerns

2 Mar

I would love to hear your concerns about caregiving. I believe there are many things to consider before becoming a full-time caregiver.

Social Security Disability

2 Mar

Has anyone been denied Social Security Disability because of not having enough work credits due to the time they spend caregiving?

Illness

2 Mar

Has anyone been diagnosed with a serious illness shortly after being a long term caregiver?

Caregiving Awareness

1 Mar

This is my first post on WORDPRESS. I want to bring awareness to an often over-looked side of caregiving. I would also like to find others out there in the same position I am in now. Everyone knows the toll emotionally and physically that being a caregiver can have. I was a caregiver for my Mother with Alzheimer’s for 6 years. It was 24/7 the whole time. I had no help. It was the hardest thing I have ever had to do in my life. My Mother passed away in 2009. Last  year I was diagnosed with congestive heart failure one day and uterine cancer the next. My doctors suggested I apply for disability since I would no longer be able to work. Much to my surprise Social Security Disability is based on work credits, and only goes back 10 years from the date you apply. In those 10 years I had taken care of my Mother for 6, so needless to say I was DENIED my disability. I appealed this decision only to be turned down again. They say the work credits are a “technical” reason, and can not be disputed. How is it fair that taking the time off to care for an aging loved one be held against you like this???? I was not aware of this “rule” until I was in need of it, but I want everyone who is considering being a caregiver to understand that this could happen to you as well. I want to see the law changed so it will not penalize you for taking time off work to be a full-time caregiver, because more times than not your health will suffer for taking on this responsibility. If not during the caregiving then a few years later. Please contact me if you are facing a serious illness after caregiving, or if you have been denied your Social Security Disability due to the time taken off to be a caregiver. It will be predominantly a woman’s problem too, since they are usually the one that takes on the caregiving role. Something needs to be done about this unfair situation.

Caregiving Awareness

1 Mar

This is my first post on WORDPRESS. I want to bring awareness to an often over-looked side of caregiving. I would also like to find others out there in the same position I am in now. Everyone knows the toll emotionally and physically that being a caregiver can have. I was a caregiver for my Mother with Alzheimer’s for 6 years. It was 24/7 the whole time. I had no help. It was the hardest thing I have ever had to do in my life. My Mother passed away in 2009. Last  year I was diagnosed with congestive heart failure one day and uterine cancer the next. My doctors suggested I apply for disability since I would no longer be able to work. Much to my surprise Social Security Disability is based on work credits, and only goes back 10 years from the date you apply. In those 10 years I had taken care of my Mother for 6, so needless to say I was DENIED my disability. I appealed this decision only to be turned down again. They say the work credits are a “technical” reason, and can not be disputed. How is it fair that taking the time off to care for an aging loved one be held against you like this???? I was not aware of this “rule” until I was in need of it, but I want everyone who is considering being a caregiver to understand that this could happen to you as well. I want to see the law changed so it will not penalize you for taking time off work to be a full-time caregiver, because more times than not your health will suffer for taking on this responsibility.

Caregiving Awareness

1 Mar

This is my first post on WORDPRESS. I want to bring awareness to an often over-looked side of caregiving. I would also like to find others out there in the same position I am in now. Everyone knows the toll emotionally and physically that being a caregiver can have. I was a caregiver for my Mother with Alzheimer’s for 6 years. It was 24/7 the whole time. I had no help. It was the hardest thing I have ever had to do in my life. My Mother passed away in 2009. Last  year I was diagnosed with congestive heart failure one day and uterine cancer the next. My doctors suggested I apply for disability since I would no longer be able to work. Much to my surprise Social Security Disability is based on work credits, and only goes back 10 years from when you apply. In those 10 years I had taken care of my Mother for 6, so needless to say I was DENIED my disability. I appealed this decision only to be turned down again. They say the work credits are a “technical” reason, and can not be disputed. How is it fair that taking the time off to care for an aging loved one be held against you like this???? I was not aware of this “rule” until I was in need of it, but I want everyone who is considering being a caregiver to understand that this could happen to you as well. I want to see the law changed so it will not penalize you for taking time off work to be a full-time caregiver, because more times than not your health will suffer for taking on this responsibility.

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